A Week at Home

Thursday, June 16, 2011

First off, let me apologize for not updating the blog sooner with the results from last week's echo. I have had a number of people say to me "what's happening?, how is Griffin doing?, I haven't seen anything on the blog." It has been a little bit of a rough transition at home. There has been very little extra time to sit and update the blog. Little did I know the sleep I had at the hospital would be better than the sleep at home. Between the new baby being up to administering Griffin's meds throughout the night, sleep is a rarity.

But enough about me and my strange sleep patterns. The appointment last week went really well. I took Griffin in and I'll admit I was a bit apprehensive. I sat in the "echo room" with our favorite nurses Natalie and Kathy waiting to see the results. It came back showing the same amount of fluid as when he left the hospital. This is great because it means the fluid isn't continually accumulating. It could simply be Griffin's normal amount that he lives with forever. The best part is that it showed his heart is healing!!!! Thank you Jesus.

After the echo I took Griffin to the Infectious Disease doctor and they said his numbers were looking good!! If they continue to progress thy will take him off all the antibiotics he is taking. Which would be amazing because he is on six doses of antibiotic a day. One med makes his pee and tears turn orange and the other makes him sweat, all things I can't imagine being great for his body. Hopefully this will also mean we can take the picc line out soon. He hates it, I think he associates it to the hospital every time I hook him up to his medication. Even as I write this I am waiting for his medication to finish so I can disconnect it and then set the alarm to do it again at 6:00 AM. Hence the reason I am writing this at 12:47 AM.

This brings me to my main point for writing. Monday morning we will be going back in to have his heart looked at again. I read and amazing verse that has encapsulated what we are going through in Romans 12:12 - Rejoice in hope, be patient in tribulation, and constant in prayer. I am rejoicing in the hope that his heart is completely fine and everything is back to normal. The words be patient in tribulation are a huge reminder to me throughout everything that has happened and as we continue in this journey. I would ask you to be constant in prayer with us so that we do not have to return to the hospital or cardiologist for a long time.

Today was the first time I had been at church in a long time and I stood there in the back during the last song and was in tears as we sang Jesus! What a Friend for Sinners. These words jumped out at me.

Jesus! what a Strength in weakness!
Let me hide myself in Him.
Tempted, tried, and sometimes failing,
He, my Strength, my victory wins.